Friday, 24 August 2012

21 Hours Later...

Congratulations to Stuart Bichard, John Askew and Guy Clarkson who bravely set out to walk for 21 hours along the Ridgeway to help us celebrate our  21st Birthday this year!

Stuart, John and Guy at the finish.

In support of the Child Brain Injury Trust, Stuart, John  and Guy set off at 3am yesterday morning and walked for 21 hours travelling from Avebury in Wiltshire and arriving safe and sound at the pub in Goring on Thames later that evening - ready for some well deserved drinks!

As you may know the Child Brain Injury Trust decided to accept the challenge of turning 21 this year by pledging to raise £210,000 in celebration of all our, and your, hard work over the years. Thanks to Stuart, John and Guy we are one step closer.

We would like to congratulate the boys for their hard work and determination; they have managed to raise an amazing £2303.75 so far, and if you haven't pledged your support yet then visit their virgin money page now.


If you have any fundraising ideas to help us celebrate our 21st Birthday, then we would love to hear from you, simply email emilyhoney@cbituk.org. We look forward to hearing from you! And one last cheer for the boys!

Thursday, 23 August 2012

Scottish Family Day and BBQ 2012

Fun in the sun at Blair Drummond Safari Park
 

Cheese! Families, CBIT staff and Digby Brown volunteers.

This year's summer BBQ was one of our best attended events ever - perhaps due to the appearance of the notoriously shy Scottish sunshine!

We were delighted to welcome some new families along, and to catch up with more familiar faces.  Digby Brown solicitors sponsored this year's event, meaning that entry to the park and all the food was free to all our families. They also provided some extremely popular animal-shaped balloons for everyone to take home! And fab new light reflecting 'slap wraps' too. Their volunteers on the day were a huge help to Mary, Beth and Claire who were able to speak to a great many people throughout the day. 

Once again, we are grateful to the staff of Blair Drummond Safari Park as well - a great location for this family day (the meerkats proving to be the most popular attraction, second to the burgers!). 

If you would like to join our mailing list to hear about future events, or are interested in sponsoring any of our family days, please email claire@cbituk.org.


Beth (right) dishing out the veggie burgers

Monday, 30 July 2012

James Cracknell - life still a battle......

A recent article by  James Cracknell for the Daily Mirror. http://www.mirror.co.uk/news/real-life-stories/james-cracknell-on-battling-back-from-horrific-1156454 highlights the ongoing difficulties he has with his brain injury and the effect it has on his family.

Although James acquired his brain injury as an adult, many of the issues he talks about are the same for families affected by childhood acquired brain injury.  He and his family have had to adapt their lives around Jame's brain injury who still suffers with fatigue, seizures and emotional difficulties.

We need people like James Cracknell who are not afraid to talk about brain injury to champion the cause not only for adults but for the many thousands of children and young people who acquire brain injury every year.

I would urge you to read the article


Lisa Turan
CEO


Thursday, 5 July 2012

CAMPAIGN LAUNCHED TO IMPROVE SERVICES FOR PEOPLE WITH ACQUIRED BRAIN INJURY
UKABIF has details on its website of how you can support the Campaign so please visit
3 July 2012
“We’re demanding immediate action on a local and national level to force change” said Professor Michael Barnes, Chair of the United Kingdom Acquired Brain Injury Forum (UKABIF) and Professor of Neurological Rehabilitation, Hunters Moor Rehabilitation Ltd, at the July launch of UKABIF’s Campaign Life after Brain Injury? Improve Services Now.
Over one million people live in the UK with the effects of Acquired Brain Injury at an estimated minimum cost of £4.1 billion.
Professor Barnes continued: “People with an Acquired Brain Injury need access to specialist rehabilitation but these services vary considerably around the UK and this is having a detrimental impact on the how well patients ultimately recover”.

UKABIF aims to promote better understanding of all aspects of Acquired Brain Injury and the Campaign’s Manifesto entitled ‘Life after Brain Injury – A Way Forward’ outlines the organisation’s urgent demands.  “We know that patients benefit from acute and early access to specialist neurological services but this crucial aspect of patient management continues to be overlooked” said Professor Barnes. “Our Manifesto presents four key recommendations which we hope health professionals, purchasers and providers of services and the general public will support.  By working together locally we can improve services and ensure that people with an ABI have the best possible treatment” he concluded. 



The Manifesto is asking for:   
·         Appropriate commissioning for specialist brain injury rehabilitation should be made compulsory and each clinical commissioning group should have a named neurological lead

·         Funded National Neuro Networks should be established to ensure neurological pathways are available throughout the stages of recovery (patient journey)

·         A National Audit of Rehabilitation should be carried out and the collection and reporting of accurate data on newly Acquired Brain Injuries made compulsory by all providers along the patient journey, from Acute to Community services*

·         A review is required of The Health Select Committee Report and the National Service Framework (NSF) for Long Term Neurological Conditions.
*As implemented with Stroke though Healthcare Emergency Planning and the Care Quality
 Commission
UKABIF has details on its website of how you can support the Campaign so please visit www.ukabif.org.uk to find out what you can do to help.   
ENDS
Notes to editor An Acquired Brain Injury is defined as brain damage caused by events after birth and can result in cognitive, physical, emotional, or behavioural impairments leading to permanent or temporary changes in functioning.  Acute and early access to local, specialist rehabilitation is essential to ensure optimal recovery, whilst maximal recovery over a lifetime can result in significant savings.  

UKABIF aims to promote better understanding of all aspects of Acquired Brain Injury; to educate, inform and provide networking opportunities for professionals, service providers, planners and policy makers and to campaign for better services in the UK.  UKABIF is a membership organisation and charity, established in 1998 by a coalition of organisations working in the field of Acquired Brain Injury.

Hard copy of the Manifesto is available.  Spokespeople and patient case studies are also available.
For further information, please contact:   Chloë Hayward, UKABIF
T: 0845 6080788     M: 07903 887655
E:
info@ukabif.org.uk
www.ukabif.org.uk
Louise Blakeborough, Chapter Five
T: 01306 731800     M: 07831 444789
E: lblakeborough@chapterfive.co.uk
www.ukabif.org.uk to find out what you can do to help.   
 

Wednesday, 27 June 2012

Mary and Claire staffing the Child Brain Injury Trust stall.

Head injury information Day 2012

To mark Action for Brain Injury Week 2012, the second Head injury information Day was held on 16th May at the Grand Central Hotel in Glasgow. The event was organised by the Brain Injury Network Group - an informal network of organisations in and around Glasgow who work with people with acquired brain injury - and Digby Brown solicitors, who also sponsored the day. 

The Day aimed to provide information about the effects of brain injury and the different services that can be accessed by people with brain injury and by their families and carers. It was also an opportunity for the organisations involved in services to network with each other.

Over 300 people attended; a great success. As well as exhibits from over 20 organisations, there were a number of speakers including representatives from the Brain Injury Rehabilitation Trust, Case Management Services, Headway Glasgow, and the Huntercombe Group.

Robert Swanney, head of Digby Brown’s Brain and Spinal Injury Unit, welcomed guests and spoke about the importance of the event in raising awareness of brain injury and the services available to those who have suffered brain injuries. Councillor Allan Stewart, former Deputy Lord Provost of Glasgow, spoke of his own experiences as a service user at Graham Anderson House in Glasgow and paid tribute to the Brian Injury Rehabilitation Trust at that facility. The Scottish Head Injuries Music Support Group provided a memorable musical welcome to the afternoon session.
The feedback from the day has been wonderful. Here are just a few of the comments:
  • "The head info day was really fantastic, it was so well represented and really well organised. Found the presentations I sat through very interesting as well. The service users we brought along with us found it extremely informative. Was nice to see a few old faces of previous service users too!”
  • “Everyone from Digby Brown made sure the day, especially the presentations, ran smoothly. It was a fantastic day and everyone appeared to enjoy it. Thank you again.”
  • “Great day, brilliant for networking and sharing ideas and issues; very worthwhile event and great for the future; well done”
If you would like more information about next year’s Head injury information Day, please get in touch with Kathleen McMonagle at Kathleen.McMonagle@digbybrown.co.uk.

Thursday, 17 May 2012

Hot off the presses!

New look newsletter launched

The first edition of our brand new quarterly newsletter is now available to view and download. Simply click here!  It contains inspiring fundraising stories, news on interesting products to help keep your children safe and contact details for our brand new benefits check up service, supplied by Frenkel Topping.

We'd love to hear what you think about the newsletter.  Why not visit our Facebook page to let us know?  Or email Claire here: claire@cbituk.org with your comments or suggestions for the next one.

Tuesday, 15 May 2012

Special needs budgets to be controlled by parents


Monday, 16 April 2012

Horse and Hound promote Cook Book

By Madeleine Pitt - Horse and Hound
11 April, 2012

Mary King shares her flapjack recipe in a charity cookbook

Top eventer Mary King has contributed to a charity cookbook with her trusty competition snack — "extra juicy flapjacks".


Mary has joined Raymond Blanc, Dame Judi Dench and Mary Berry in donating a recipe to “21 Treats for 21 Years”, which celebrates the Child Brain Injury Trust’s 21st anniversary.

The charity— which Mary became a patron of in March 2011 — supports families of children with brain injuries and provides information and training for healthcare workers.

“I felt it was a fantastic charity to support, helping families with children who’ve had accidents,” Mary told H&H.

“Especially as a mother, with my daughter Emily riding, you dread to think of anything awful happening to their head.”

The cookbook costs £5 (plus £1 p&p).
To order a copy call 01869 341075 or email annemariemacmillan@cbituk.org

Sophie says thanks

Sophie Hanvey presents Nadia Magee of the Child Brain Injury Trust with a cheque for �2,890. Big-hearted Sophie helped raise the funds for the charity by organising a pub quiz and a triathlon event.

Sophie Hanvey presents Nadia Magee of the Child Brain Injury Trust with a cheque for £2,890. Big-hearted Sophie helped raise the funds for the charity by organising a pub quiz and a triathlon event.
JORDANSTOWN girl Sophie Hanvey has helped raise over £2,800 for the Child Brain Injury Trust and she presented a cheque to the charity this week.

Following a brain haemorrhage in December 2005 the charity played a major role in helping and supporting Sophie, who is now aged 19, readjust to life.
Extensive treatment meamt Sophie’s recovery was slow but eventually she was able to return to school, helped by a classroom assistant and the Child Brain Injury Trust.
As a thank you for their support, Sophie held a triathlon-style event in Ballyearl Leisure Centre last July and a quiz in the Ulster Transport Bowling Club in November to raise much needed funds.
Sophie raised £2,868.75 and presented a cheque for £2,890 to Nadia Magee of the charity.
Sophie thanked everyone who sponsored her and made donations towards this worthy cause, especially the staff and management of Vivo Essentials on Circular Road Jordanstown; Village Pharmacy, Whiteabbey; staff at Ballyearl Leisure Centre and the Ulster Transport Bowling Club in Jordanstown.
Sophie’s father Trevor said: “The Child Brain Injury Trust was a great support but it is not fully funded and relies a lot on donations and Sophie wanted to repay some of the help she received.”

This story and photo appear courtesy of Newtonabbey Times. All copyright applies.